For cancer patients, the time spent waiting for scan results or treatment decisions can be one of the most worrying aspects of their journey. Often referred to as “scanxiety”, this period is marked by a whirlwind of emotions, such as fear and anxiety. The fear often stems from the uncertainty of outcomes. This can be particularly so following a diagnosis of mesothelioma, as many patients have not previously heard of the disease. This mental strain can also manifest in physical symptoms such as insomnia, loss of appetite, headaches, or increased heart rate, exacerbating an already difficult situation.
Studies have shown that prolonged anxiety during these periods can affect overall mental health and potentially impact a patient’s ability to cope with subsequent treatments. In some cases, the distress can lead to avoidance of future follow-ups and appointments, due to the fear of the news they will receive.
The healthcare profession plays a pivotal role in alleviating patient anxiety during this critical period. By addressing the emotional and informational needs of patients, medical teams can create a more supportive environment and improve the overall patient experience. It is vital that healthcare professionals recognise and address the emotional toll and explore ways to better support patients during these challenging times. Cancer treatment is not only about targeting the disease but also about caring for the whole person. It is also important that news is delivered in a clear and empathetic manner, and that the medical teams recognise when bad news is being delivered and the impact this will have on the patient and their family.
How can the medical profession help?
1. Improving Communication and Transparency
Clear and empathetic communication is essential. When patients are left in the dark about timelines or potential outcomes, their anxiety can escalate. Providing realistic timeframes for results, explaining the purpose of tests, and keeping patients informed of any delays can help ease the uncertainty.
Medical teams should also make an effort to explain medical terms and procedures in layman’s terms, avoiding jargon that can further confuse or alarm patients. They should create a space where patients feel comfortable asking questions, to build trust and reduce fear.
2. Streamlining Result Turnaround Times
One of the most effective ways to reduce patient anxiety is to shorten the waiting time for test results. This might involve prioritising cancer cases in when processing test results, using advanced diagnostic technology, or implementing systems for faster communication of results to patients. Where this is not feasible, offering regular updates can reassure patients that their concerns are being actively addressed.
3. Providing Emotional Support Services
Hospitals and clinics should consider integrating mental health professionals into oncology care teams, who can offer strategies to manage anxiety, such as mindfulness techniques, breathing exercises, or referrals for therapy. Support groups such as HASAG can also provide a valuable outlet for patients to share their experiences with others who understand what they are going through, either in-person or virtual.
4. Utilising Technology for Updates
Digital tools such as patient portals or mobile apps can help keep patients informed about their test results, appointments, and next steps in their care journey. These platforms can reduce the anxiety of “not knowing” by providing timely updates and resources.
5. Offering Dedicated Point-of-Contact Staff
Assigning a dedicated oncology nurse can provide patients with a consistent point of contact throughout their care. This individual can answer questions, clarify questions patients may have about their treatment plan, and provide emotional support, reducing the sense of overwhelm patients and their families often feel.
HASAG advocate for patients and their families and offer important signposting, to ensure support is provided throughout the patient’s journey, both at the hospital and at home.
